What is it all about?
The ENVISAGE-SP Program, co-developed by health services researchers, parents, and pediatric service providers introduces service providers to a set of modern concepts, which endorse a holistic, strengths-based, function-promoting, family-centred approach to children's health and development. Through a series of five workshops, ENVISAGE-SP offers ideas and provides tools/resources to apply these concepts in everyday practice with families.
How can you help?
Who can participate?
Service providers who work with children with neurodevelopmental disabilities in Canada and Australia.
If you are interested or would like more information about the study, please contact Debbie Hughes, Research Coordinator: [email protected].
Alt Text: Rainbow background with tree in centre and text above that reads “We’re looking for people with cerebral palsy to participate in a research study ‘Exploring the Influence of Sexuality and Gender on the Health Care Transition’. If you are between 14-25 years old and have CP contact us at [email protected] or [email protected]”
Sexuality (who someone is attracted to and their activities to express sexuality) and Gender identity (who they are) are two core elements of human personality. Transition from childhood to adulthood is the prime time when an individual develops these core elements of life. It is evident that adolescents or young adults with cerebral palsy do not receive enough education or support from the health care providers during their transition period regarding sexuality and gender. People with cerebral palsy may require additional education and support due to physical impairment; however, their needs are generally overlooked and they are often considered as asexual by their health care providers.
In this study, our goal is to understand the influences of sexuality and gender identity on the transition experience of youth with cerebral palsy. We will use a questionnaire and interviews to gather information about their experiences. Adolescents or young adults aged 14 to 25 with cerebral palsy of any gender are asked to contact the study team at [email protected]
Calling pediatric service providers and parents of children with a developmental disability! CanChild researchers are currently developing an updated version of MPOC, our measure of family-centred service. We now have a draft of a new tool ready for review.
We would like pediatric service providers and parents to give us feedback on the items (questions) on the tool. If you are interested or would like more information please contact us at [email protected]
We are looking for Canadian youth (ages 16-24) with special healthcare needs (diagnosed with a disability or chronic physical/mental health condition) to participate in an online interview about healthcare transition from pediatric to adult services during COVID-19. Contact Barb Galuppi [email protected] to participate in this research study. Click here to learn more.
https://www.youtube.com/watch?v=2rhGA5JF590
Do you have a child or adolescent with Cerebral Palsy between 2 to 18 years old? Would you like to participate in a measurement study to test a new instrument called Gross Motor Function Family Report? If you are interested or have any questions, please email [email protected].
